Donate with Us: Together Towards Treatment

Become a Global Difference Maker to create a path to treatment for neurological chromosomal disorders by driving research and a standard of care.

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Become a Global Difference Maker to create a path to treatment for neurological chromosomal disorders by driving research and a standard of care.

Join the Cause

Your generous support will help over 350 families and counting impacted by a rare chromosome 8p disorder. Despite being rare, our genes are clues to common diseases that affect the brain and our health. 8p heroes and families have many questions about what to expect and who to go to to help.

Project 8p is working passionately to find answers. Researchers are trying to help uncover which genes or pathways are affected, how they work, and what treatment options are possible. Without your donations, 8p heroes face daily challenges in normal things most take for granted like walking and talking. They also deal with serious health impacts with cognitive impairment, seizures, autism, and heart defects. Please Join the Cause.

Some of our milestones include:

  • We launched our 2-Year Research Plan that prioritizes key initiatives and launch of new innovative projects.
    • The My Hero Initiative enables us to be truly patient-led and systematically collect data with oversight by Project 8p to improve medical care and treatment options.
    • From scratch, we built a preeminent 8p-focused researcher network
  • We launched monthly research roundtables. A team science approach where scientists, clinicians and families exchange information and ideas.
  • The Patient Leadership Board hosted Project 8p’s first family retreat in August 2022 in Colorado. Over fifty 8p families bonded and many more raised awareness in our 8,000 steps for 8p on August 8th, Chromosome 8p Day.

Looking Ahead - To support our new Five Year Strategic Plan, Project 8p is asking you to become a Global Difference Maker to:

  1. Sponsor research towards a cure
  2. Robust education and family and scientific conferences to connect us all over the world
  3. Expand access to clinical care and scale our Neurogenetics MultiDisciplinary Clinic to help us better understand what to expect with 8p and our unknown future

Please consider us for employer matching!

Visit our homepage at https://project8p.org/

Project 8p Foundation is a registered 501(c)(3) charitable organization with EIN 83-2545342.
All contributions are deemed tax-deductible.